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Photo: WFH Humanitarian Aid visit to Cambodia.

TREATMENT FOR ALL

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WFH Global Policy and Access Summit

Happening NOW! Join us virtually on July 10 and 11 for the fourth edition of the WFH Global Policy and Access Summit (GPAS).

NEWS & EVENTS

WFH represents global bleeding disorders community at 78th World Health Assembly

WFH represents global bleeding disorders community at 78th World Health Assembly

The World Federation of Hemophilia (WFH) participated in the 78th World Health Assembly (WHA78) from May 19 to 27 2025, in Geneva, Switzerland. Below is a recap of the WFH’s advocacy efforts done through side events, and statements made at the WHA78, where we represented the voice of the global bleeding disorders community with the World Health Organization (WHO), its members states and other international healthcare leaders and stakeholders.

From crisis to control: the effect of WFH support in Zambia

For families living with hemophilia, treatment options can make the difference between fear and freedom. Ackson, father of 10-year-old Manasseh, a boy with hemophilia, recalls the early days of his son’s diagnosis—when a minor mouth injury led to days of uncontrolled bleeding and a rushed trip to a hospital unequipped with factor replacement therapy. That period of uncertainty and crisis has been replaced by calm and control, thanks to the multi-pronged efforts of the World Federation of Hemophilia (WFH).

Apply now: Susan Skinner Memorial Fund scholarship

Apply now: Susan Skinner Memorial Fund scholarship

The Susan Skinner Memorial Fund scholarship program fosters leadership and encourages the active participation of women of all ages in the global bleeding disorders community through education, training, and networking at major international WFH events. Applications are now open! Read on to find out more about this exciting opportunity.

HEALTHCARE RESOURCES

GENE THERAPY REGISTRY

A prospective, observational, and longitudinal registry to collect long-term data on people with hemophilia who receive gene therapy.

About the GTR

REQUEST HUMANITARIAN AID

The WFH Humanitarian Aid Program improves access to care and treatment by providing support to emerging countries.

Request support

TREATMENT GUIDELINES

The WFH works to provide the most up-to-date and evidence-based standards of care for the global bleeding disorders community.

View treatment guidelines

ELEARNING PLATFORM

Your one-stop-shop for everything you need on hemophilia and other inherited bleeding disorders.

Access eLearning now

ANNUAL GLOBAL SURVEY (AGS)

Access interactive graphs to visualize demographic and treatment data on people with bleeding disorders, and view AGS reports now!

Interactive graphs

WORLD BLEEDING DISORDERS REGISTRY

The only global registry collecting standardized clinical data on people with hemophilia and people with von Willebrand disease.

Learn more

WBDR DATA DASHBOARD

Provides a comprehensive, visual overview of important WBDR data and metrics from around the world.

Learn more

SHARED DECISION MAKING

An interactive decision-support system approach designed to facilitate discussions regarding treatment options, leading to informed decision-making.

WFH SDM Tool

TRAINING

The WFH empowers patient leaders and healthcare professionals worldwide by providing training programs and initiatives.

Start today

GENE THERAPY REGISTRY

A prospective, observational, and longitudinal registry to collect long-term data on people with hemophilia who receive gene therapy.

About the GTR

REQUEST HUMANITARIAN AID

The WFH Humanitarian Aid Program improves access to care and treatment by providing support to emerging countries.

Request support

TREATMENT GUIDELINES

The WFH works to provide the most up-to-date and evidence-based standards of care for the global bleeding disorders community.

View treatment guidelines

ELEARNING PLATFORM

Your one-stop-shop for everything you need on hemophilia and other inherited bleeding disorders.

Access eLearning now

ANNUAL GLOBAL SURVEY (AGS)

Access interactive graphs to visualize demographic and treatment data on people with bleeding disorders, and view AGS reports now!

Interactive graphs

WORLD BLEEDING DISORDERS REGISTRY

The only global registry collecting standardized clinical data on people with hemophilia and people with von Willebrand disease.

Learn more

WBDR DATA DASHBOARD

Provides a comprehensive, visual overview of important WBDR data and metrics from around the world.

Learn more

SHARED DECISION MAKING

An interactive decision-support system approach designed to facilitate discussions regarding treatment options, leading to informed decision-making.

WFH SDM Tool

TRAINING

The WFH empowers patient leaders and healthcare professionals worldwide by providing training programs and initiatives.

Start today

RESOURCES FOR PWBD

SHARED DECISION MAKING

An interactive decision-support system approach designed to facilitate discussions regarding treatment options, leading to informed decision-making.

WFH SDM Tool

FELLOWSHIPS AND GRANTS

For individuals and organizations to build the talent and infrastructure needed to further the WFH vision of Treatment for All.

Request fellowships and grants

PACT ADVOCACY ACADEMY

This eight-month course provides knowledge and skills that can help leaders carry out successful evidence-based advocacy campaigns.

Learn more

TREATMENT GUIDELINES

The WFH works to provide the most up-to-date and evidence-based standards of care for the global bleeding disorders community.

View treatment guidelines

FIND AN NMO OR HTC

Looking for one of our national member organizations or a hemophilia treatment centre? Consult our global directories.

Find local support

ELEARNING PLATFORM

Your one-stop-shop for everything you need on hemophilia and other inherited bleeding disorders.

Access eLearning now

ANNUAL GLOBAL SURVEY (AGS)

Access interactive graphs to visualize demographic and treatment data on people with bleeding disorders, and view AGS reports now!

Interactive graphs

SHARED DECISION MAKING

An interactive decision-support system approach designed to facilitate discussions regarding treatment options, leading to informed decision-making.

WFH SDM Tool

FELLOWSHIPS AND GRANTS

For individuals and organizations to build the talent and infrastructure needed to further the WFH vision of Treatment for All.

Request fellowships and grants

PACT ADVOCACY ACADEMY

This eight-month course provides knowledge and skills that can help leaders carry out successful evidence-based advocacy campaigns.

Learn more

TREATMENT GUIDELINES

The WFH works to provide the most up-to-date and evidence-based standards of care for the global bleeding disorders community.

View treatment guidelines

FIND AN NMO OR HTC

Looking for one of our national member organizations or a hemophilia treatment centre? Consult our global directories.

Find local support

ELEARNING PLATFORM

Your one-stop-shop for everything you need on hemophilia and other inherited bleeding disorders.

Access eLearning now

ANNUAL GLOBAL SURVEY (AGS)

Access interactive graphs to visualize demographic and treatment data on people with bleeding disorders, and view AGS reports now!

Interactive graphs

The World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo) are excited to welcome the global bleeding disorders community to the WFH 2024 World Congress in Madrid, Spain from April 21 to 24. 

The WFH eLearning platform is your one-stop-shop for all your educational resource needs.
With just a few clicks, you can find everything you need on hemophilia and other inherited bleeding disorders.

KEY RESOURCES

WFH 2023 Comprehensive Care Summit

The global summit will encompass the biennial International WFH Musculoskeletal (MSK) Congress, and will include MSK, medical and multi-disciplinary tracks—all centering around people with bleeding disorders.

STAY CONNECTED!

Membership

Get involved by becoming a member today.

Haemophilia is the official scientific journal of the WFH.

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Follow us on social media & subscribe to the WFH newsletter.

STAY CONNECTED!

Membership

Get involved by becoming a member today.

Subscribe

Subscribe to the WFH newsletter.

Follow us

Follow us on social media.